Lobby organisation
ALAN asbl-Maladies Rares Luxembourg
NGO / non-profit · Cross-sector / other · HQ: Luxembourg · Transparency Register entry
As of 9 September 2026, ALAN asbl-Maladies Rares Luxembourg appears in 5 declared MEP meetings (4 different MEPs), most often with European People's Party.
In their own words
“Fostering an environment for people living with a rare disease to realize their full potential through recognition, equal opportunities and improved quality of life.”
Stated goals from the organisation's own Transparency Register filing.
Who they meet, and when
Which groups they meet
Share of this organisation's 5 declared meetings, by the meeting MEP's political group.
Meetings by year
Declared meetings per calendar year, 2021–2025. Bar length is relative to its busiest year (2 in 2025).
Group is each MEP's current political group, not necessarily the one they sat with at the time. Shares are rounded to whole percent.
The MEPs they meet most
The 5 most recent declared meetings
| Date | MEP | Subject |
|---|---|---|
| 14 Mar 2025 | Martine Kemp | échange sur la politique européeenne sur les maladies rares |
| 5 Mar 2025 | Isabel Wiseler-Lima | Rare Disease Day |
| 19 Jan 2024 | Isabel Wiseler-Lima | Législation pharmaceutique européenne |
| 8 Dec 2023 | Marc Angel | Révision de la législation pharmaceutique européenne |
| 23 Apr 2021 | Damian Boeselager | Labour migration |
Meeting an MEP is a normal part of democratic life; the record is shown so anyone can see it.