MEP of the week

Lobby organisation

European Myasthenia Gravis Association

NGO or non-profit · Health & pharma · HQ: Belgium · Transparency Register entry

As of 8 October 2026, European Myasthenia Gravis Association appears in 3 declared MEP meetings (3 different MEPs), most often with European People's Party.

3
declared meetings
with current MEPs
3
MEPs met
€50k/yr
declared lobbying spend
self-reported to the register
1.8
lobbyists
full time equivalent

In their own words

“Our primary goal: to unite MG associations across the EU and promote the formation of new ones where none exist Key activities: • facilitate medical research • raising awareness • patients advocacy and education • patient support […]”

Stated goals from the organisation's own Transparency Register filing - the text on file breaks off mid-sentence where marked […].

Who they meet, and when

Which groups they meet

Share of this organisation's 3 declared meetings, by the meeting MEP's political group.

European People's Party267%
Socialists & Democrats133%

Meetings by year

Declared meetings per calendar year, 2025–2025. Bar length is relative to its busiest year (3 in 2025). All meetings were in one calendar year.

2025
3

Group is each MEP's current political group, not necessarily the one they sat with at the time. Shares are rounded to whole percent.

The MEPs they meet most

Romana Jerković
1 meeting · S&D
Tomislav Sokol
1 meeting · EPP
András Tivadar Kulja
1 meeting · EPP

The 3 most recent declared meetings

DateMEPSubject
1 Jul 2025András Tivadar KuljaMyasthenia gravis in Europe, Rare diseases
22 May 2025Romana JerkovićMyasthenia Gravis
21 May 2025Tomislav SokolHealth policy

Meeting an MEP is a normal part of democratic life; the record is shown so anyone can see it.