Lobby organisation
European Patient Organisation for Dysimmune and Inflammatory Neuropathies
NGO or non-profit · Health & pharma · HQ: France · Transparency Register entry
As of 7 November 2026, European Patient Organisation for Dysimmune and Inflammatory Neuropathies appears in 7 declared MEP meetings (7 different MEPs), most often with European People's Party.
In their own words
“EPODIN’s contribution aims, by mobilizing and strengthening the patient’s voice, to give each European citizen living with a rare immune-mediated peripheral neuropathy the opportunity to reduce the burden and inequalities due to the disease.”
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“EPODIN´s main objectives are to: a) Be the voice of patients living with rare immune-mediated peripheral neuropathies at a European level, b) Work with all European regular patients' organizations to ensure that all patients in all European countries living with rare immune-mediated peripheral neuropathies can have a voice to improve living with the disease, c) Achieve the highest standards of diagnosis, treatment and care for rare immune-mediated peripheral neuropathic patients in each European country, d) Raise public awareness of immune-mediated neuropathies, e) Promote measures to research in the field of rare immune-mediated peripheral neuropathies and related issues, f) Collaborate with European health institutions and all me (...)”
Stated goals from the organisation's own Transparency Register filing.
Who they meet, and when
Which groups they meet
Share of this organisation's 7 declared meetings, by the meeting MEP's political group.
Meetings by year
Declared meetings per calendar year, 2023–2026. Bar length is relative to its busiest year (4 in 2026). Hatched: 2026 is a part-year - the record runs to 6 Nov 2026.
Group is each MEP's current political group, not necessarily the one they sat with at the time. Shares are rounded to whole percent.
The MEPs they meet most
The 7 most recent declared meetings
| Date | MEP | Subject |
|---|---|---|
| 13 May 2026 | Stine Bosse | Biotech Act |
| 8 Apr 2026 | Kristian Vigenin | Biotech Act |
| 8 Apr 2026 | Ingeborg ter Laak | Biotech Act |
| 7 Apr 2026 | Nicolás González Casares | Rare Diseases (access and research of atmp's for rare diseases) |
| 25 Mar 2025 | Sérgio Humberto | Presenting the organization to the office. |
| 18 Nov 2024 | András Tivadar Kulja | Rare diseases |
| 8 Nov 2023 | Tomislav Sokol | Pharmaceutical legislation |
Meeting an MEP is a normal part of democratic life; the record is shown so anyone can see it.