Lobby organisation
European Patient Organisation for Dysimmune and Inflammatory Neuropathies
NGO / non-profit · Health & pharma · HQ: France · Transparency Register entry
As of 9 September 2026, European Patient Organisation for Dysimmune and Inflammatory Neuropathies appears in 6 declared MEP meetings (6 different MEPs), most often with European People's Party.
In their own words
“EPODIN’s contribution aims, by mobilizing and strengthening the patient’s voice, to give each European citizen living with a rare immune-mediated peripheral neuropathy the opportunity to reduce the burden and inequalities due to the disease. EPODIN´s main objectives are to: a) Be the voice of patients living with rare immune-mediated peripheral neuropathies at a European level, b) Work with all European…”
Stated goals from the organisation's own Transparency Register filing.
Who they meet, and when
Which groups they meet
Share of this organisation's 6 declared meetings, by the meeting MEP's political group.
Meetings by year
Declared meetings per calendar year, 2023–2026. Bar length is relative to its busiest year (4 in 2026).
Group is each MEP's current political group, not necessarily the one they sat with at the time. Shares are rounded to whole percent.
The MEPs they meet most
The 6 most recent declared meetings
| Date | MEP | Subject |
|---|---|---|
| 13 May 2026 | Stine Bosse | Biotech Act |
| 8 Apr 2026 | Kristian Vigenin | Biotech Act |
| 8 Apr 2026 | Ingeborg ter Laak | Biotech Act |
| 7 Apr 2026 | Nicolás González Casares | Rare Diseases (access and research of atmp's for rare diseases) |
| 18 Nov 2024 | András Tivadar Kulja | Rare diseases |
| 8 Nov 2023 | Tomislav Sokol | Pharmaceutical legislation |
Meeting an MEP is a normal part of democratic life; the record is shown so anyone can see it.