MEP of the week

Lobby organisation

European Patient Organisation for Dysimmune and Inflammatory Neuropathies

NGO or non-profit · Health & pharma · HQ: France · Transparency Register entry

As of 7 November 2026, European Patient Organisation for Dysimmune and Inflammatory Neuropathies appears in 7 declared MEP meetings (7 different MEPs), most often with European People's Party.

7
declared meetings
with current MEPs
7
MEPs met
–
lobbying spend
none reported in the Register
3.0
lobbyists
full time equivalent

In their own words

“EPODIN’s contribution aims, by mobilizing and strengthening the patient’s voice, to give each European citizen living with a rare immune-mediated peripheral neuropathy the opportunity to reduce the burden and inequalities due to the disease.”

Read the rest of the statementShow less of the statement

“EPODIN´s main objectives are to: a) Be the voice of patients living with rare immune-mediated peripheral neuropathies at a European level, b) Work with all European regular patients' organizations to ensure that all patients in all European countries living with rare immune-mediated peripheral neuropathies can have a voice to improve living with the disease, c) Achieve the highest standards of diagnosis, treatment and care for rare immune-mediated peripheral neuropathic patients in each European country, d) Raise public awareness of immune-mediated neuropathies, e) Promote measures to research in the field of rare immune-mediated peripheral neuropathies and related issues, f) Collaborate with European health institutions and all me (...)”

Stated goals from the organisation's own Transparency Register filing.

Who they meet, and when

Which groups they meet

Share of this organisation's 7 declared meetings, by the meeting MEP's political group.

European People's Party457%
Socialists & Democrats229%
Renew Europe114%

Meetings by year

Declared meetings per calendar year, 2023–2026. Bar length is relative to its busiest year (4 in 2026). Hatched: 2026 is a part-year - the record runs to 6 Nov 2026.

2023
1
2024
1
2025
1
2026
4

Group is each MEP's current political group, not necessarily the one they sat with at the time. Shares are rounded to whole percent.

The MEPs they meet most

Tomislav Sokol
1 meeting · EPP
András Tivadar Kulja
1 meeting · EPP
Ingeborg ter Laak
1 meeting · EPP
Stine Bosse
1 meeting · Renew

The 7 most recent declared meetings

DateMEPSubject
13 May 2026Stine BosseBiotech Act
8 Apr 2026Kristian VigeninBiotech Act
8 Apr 2026Ingeborg ter LaakBiotech Act
7 Apr 2026Nicolás González CasaresRare Diseases (access and research of atmp's for rare diseases)
25 Mar 2025Sérgio HumbertoPresenting the organization to the office.
18 Nov 2024András Tivadar KuljaRare diseases
8 Nov 2023Tomislav SokolPharmaceutical legislation

Meeting an MEP is a normal part of democratic life; the record is shown so anyone can see it.