Lobby organisation
International Patient Organisation for Primary Immunodeficiencies
NGO / non-profit · Health & pharma · HQ: Belgium · Transparency Register entry
As of 9 September 2026, International Patient Organisation for Primary Immunodeficiencies appears in 8 declared MEP meetings (6 different MEPs), most often with European People's Party.
In their own words
“IPOPI's mission is to improving the quality of life for people with primary immunodeficiencies (PID) and associated conditions by raising awareness, promoting equitable access to early diagnosis, personalised treatment through global collaborations, `partnerships and innovative solutions. IPOPI’s 4 strategic objectives 2026-2030: 1. Expand global access to early diagnosis and patient-centred care for PIDs and associated conditions through advocacy, awareness and…”
Stated goals from the organisation's own Transparency Register filing.
Who they meet, and when
Which groups they meet
Share of this organisation's 8 declared meetings, by the meeting MEP's political group.
Meetings by year
Declared meetings per calendar year, 2019–2025. Bar length is relative to its busiest year (3 in 2019).
Group is each MEP's current political group, not necessarily the one they sat with at the time. Shares are rounded to whole percent.
The MEPs they meet most
The 8 most recent declared meetings
| Date | MEP | Subject |
|---|---|---|
| 9 May 2025 | Sirpa Pietikäinen | Rare diseases |
| 21 Nov 2024 | András Tivadar Kulja | European health policy |
| 9 Sep 2024 | Billy Kelleher | Rare Disease Screening |
| 26 Jan 2023 | Nicolás González Casares | SoHO |
| 24 Mar 2020 | Sirpa Pietikäinen | Organisation of parliamentary patient conference on the blood legislation |
| 17 Oct 2019 | Sirpa Pietikäinen | Health Policy |
| 16 Sep 2019 | Irena Joveva | Situation of patients with immunodeficiencies |
| 3 Sep 2019 | Tilly Metz | Rare diseases |
Meeting an MEP is a normal part of democratic life; the record is shown so anyone can see it.