Lobby organisation
Empowered By Us
Business group · Health & pharma · HQ: Netherlands · Transparency Register entry
As of 8 October 2026, Empowered By Us appears in 6 declared MEP meetings (6 different MEPs), most often with European People's Party.
In their own words
“Empowered By Us is an independent, patient-led strategic advisory initiative operating at the intersection of rare disease policy, health system design, and equitable access. It connects lived experience with policy, governance, and innovation processes, engaging EU institutions, national authorities, and cross-sector stakeholders to support more coherent, inclusive, and implementable health systems.”
Read the rest of the statementShow less of the statement
“Its work focuses on strengthening how rare disease priorities are translated into policy and practice, particularly in areas where fragmentation, misaligned incentives, or structural barriers affect access and outcomes. Core activities include policy and systems design, structured multi-stakeholder dialogue, equitable access frameworks, and integration of lived experience into decision-making processes.”
Stated goals from the organisation's own Transparency Register filing.
Who they meet, and when
Which groups they meet
Share of this organisation's 6 declared meetings, by the meeting MEP's political group.
Meetings by year
Declared meetings per calendar year, 2025–2025. Bar length is relative to its busiest year (6 in 2025). All meetings were in one calendar year.
Group is each MEP's current political group, not necessarily the one they sat with at the time. Shares are rounded to whole percent.
The MEPs they meet most
The 6 most recent declared meetings
| Date | MEP | Subject |
|---|---|---|
| 19 May 2025 | Michalis Hadjipantela | Meeting about action on rare diseases |
| 22 Apr 2025 | András Tivadar Kulja | Rare disease patients' participation |
| 3 Feb 2025 | Marit Maij | Exchange of views |
| 3 Feb 2025 | Kim van Sparrentak | Equity and inclusion |
| 3 Feb 2025 | Ingeborg ter Laak | Rare diseases |
| 28 Jan 2025 | Katrin Langensiepen | General exchange |
Meeting an MEP is a normal part of democratic life; the record is shown so anyone can see it.