Lobby organisation
European Haemophilia Consortium
NGO or non-profit · Health & pharma · HQ: Belgium · Transparency Register entry
As of 7 November 2026, European Haemophilia Consortium appears in 8 declared MEP meetings (8 different MEPs), most often with Socialists & Democrats.
In their own words
“The European Haemophilia Consortium (EHC) is an international non-profit organisation representing 49 national patient organisations of people with rare bleeding disorders from 27 Member States of the European Union (EU) and most Member States of the Council of Europe.”
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“The EHC represents over 90,000 people diagnosed with a rare bleeding conditions such as haemophilia, von Willebrand Disease and other rare bleeding disorders across Europe. However, it is estimated that many more live with an undiagnosed rare bleeding disorder. The EHC's main external objectives are to: 1) Support and empower National Member Organisations (NMOs) at national and European levels and help them to engage with each other; 2) Promote access to optimal treatment and comprehensive care for people with rare bleeding disorders in Europe; 3) Ensure constructive engagement with key stakeholders; and 4) Work proactively in and contribute to European policy-making for rare bleeding di (...)”
Stated goals from the organisation's own Transparency Register filing.
Who they meet, and when
Which groups they meet
Share of this organisation's 8 declared meetings, by the meeting MEP's political group.
Meetings by year
Declared meetings per calendar year, 2019–2026. Bar length is relative to its busiest year (3 in 2025). Hatched: 2026 is a part-year - the record runs to 6 Nov 2026.
Group is each MEP's current political group, not necessarily the one they sat with at the time. Shares are rounded to whole percent.
The MEPs they meet most
The 8 most recent declared meetings
| Date | MEP | Subject |
|---|---|---|
| 29 Sep 2026 | Aurelijus Veryga | Event: “Bridging the Gap: Bleeding Disorders and Cardiovascular Care in Europe” |
| 25 Jun 2026 | Victor Negrescu | Access to care for people with bleeding disorders |
| 24 Jun 2026 | Elena Nevado del Campo | Bleeding disorders in women |
| 3 Jun 2025 | Romana Jerković | Cardiovascular Health |
| 22 May 2025 | Tomislav Sokol | Health policy |
| 10 Apr 2025 | Tiemo Wölken | Critical Medicines Act |
| 10 Dec 2024 | Vytenis Povilas Andriukaitis | EU health policy |
| 25 Sep 2019 | Sirpa Pietikäinen | Health Policy |
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