Lobby organisation
Federation of European Scleroderma Associations aisbl
NGO / non-profit · Health & pharma · HQ: Belgium · Transparency Register entry
As of 9 September 2026, Federation of European Scleroderma Associations aisbl appears in 8 declared MEP meetings (6 different MEPs), most often with European People's Party.
In their own words
“The Federation of European Scleroderma Associations (FESCA) aisbl was founded in 2007 and is registered as a charity in Belgium, with a Board drawn from five different EU countries. It is an umbrella group of 27 national scleroderma patient support-and-advocacy organisations in 21 European countries. Our mission is to provide information to people with scleroderma, increase awareness on an international…”
Stated goals from the organisation's own Transparency Register filing.
Who they meet, and when
Which groups they meet
Share of this organisation's 8 declared meetings, by the meeting MEP's political group.
Meetings by year
Declared meetings per calendar year, 2024–2026. Bar length is relative to its busiest year (4 in 2025).
Group is each MEP's current political group, not necessarily the one they sat with at the time. Shares are rounded to whole percent.
The MEPs they meet most
The 8 most recent declared meetings
| Date | MEP | Subject |
|---|---|---|
| 11 Feb 2026 | Elena Nevado del Campo | INL Rare Diseases |
| 17 Nov 2025 | András Tivadar Kulja | Scleroderma situation in Europe |
| 17 Nov 2025 | Estelle Ceulemans | Maladies rares |
| 28 Jan 2025 | Tomislav Sokol | Health Policy |
| 16 Jan 2025 | Oliver Schenk | European Health Policy |
| 25 Nov 2024 | Adam Jarubas | Scleroderma in EU |
| 20 Nov 2024 | Elena Nevado del Campo | Scleroderma and rare rheumatic diseases |
| 20 Nov 2024 | András Tivadar Kulja | Scleroderma patients in Europe |
Meeting an MEP is a normal part of democratic life; the record is shown so anyone can see it.