Lobby organisation
Fondazione Telethon ETS
NGO / non-profit · Think tanks & research · HQ: Italy · website · Transparency Register entry
As of 9 September 2026, Fondazione Telethon ETS appears in 5 declared MEP meetings (4 different MEPs), most often with Socialists & Democrats.
In their own words
“Telethon Foundation is an Italian non-profit organization that has been supporting bio-medical research on rare and genetic diseases for more than 30 years. The vision of the Telethon Foundation is to translate research results into therapies available to patients. Telethon, besides being an Italian organization, is committed to treat any patient in the world affected by a rare genetic disease…”
Stated goals from the organisation's own Transparency Register filing.
Who they meet, and when
Which groups they meet
Share of this organisation's 5 declared meetings, by the meeting MEP's political group.
Meetings by year
Declared meetings per calendar year, 2023–2025. Bar length is relative to its busiest year (3 in 2025).
Group is each MEP's current political group, not necessarily the one they sat with at the time. Shares are rounded to whole percent.
The MEPs they meet most
The 5 most recent declared meetings
| Date | MEP | Subject |
|---|---|---|
| 22 May 2025 | Tomislav Sokol | Health policy |
| 22 May 2025 | Ondřej Knotek | Rare Diseases |
| 21 May 2025 | Vlad Vasile-Voiculescu | Introductory Meeting |
| 17 Jan 2024 | Brando Benifei | Discussion on initiatives on rare diseases issues |
| 25 Oct 2023 | Brando Benifei | Discussion on rare diseases |
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